Three Things You Can Do TODAY to Make a Difference for People with Lupus

And each takes only a few minutes (and are mostly self-serving). I promise. 

Carie Sherman1) Go shopping! I’ll be putting my Amazon Prime account to good use this week by specifying Lupus Colorado (under its incorporation name of Lupus Foundation of Colorado) as the beneficiary. In addition to the regular portion of donations, Lupus Colorado will receive an extra $5 for each donation. Learn more.

2) Make room for your Amazon purchases (and have someone ELSE pick up the stuff!). Lupus Colorado depends on your support to help the individuals and families impacted by this lupus. Meet spring with a cleaner house and a do-gooder spirit by donating your unwanted clothes, goods, and household items by calling 303-231-9337. Learn more.

3) Become an armchair advocate. While you’re waiting for your lives on Candy Crush to reset (I’m looking at you, dear husband!), visit http://www.congressweb.com/lri. There you’ll find info on increasing access to medications that already exist and increasing funding for important research. Our executive director is in Washington, D.C., now. Let’s show her that we’ve got her back.

These are just a few simple ideas to get you into support mode. As always, thanks for supporting me and all the people who benefit from the amazing work of Lupus Colorado.

lupus (1)

 

 


February 2014 Newsletter

Collaboration pushes forward to find treatments for lupus

scientistsBy Lupus Research Institute

Scientists are collaborating to accelerate the process for finding new treatments for lupus and other autoimmune diseases.

The Alliance for Lupus Research (ALR) and the Lupus Research Institute (LRI) are proud to join the National Institutes of Health (NIH)in the Accelerating Medicines Partnership (AMP) recently launched to work on new treatments.

The new $230 million collaboration will harness the collective knowledge and resources among the NIH, biopharmaceutical companies, nonprofit organizations and academic communities. Recognizing that no new targeted therapies exist for severe lupus, the new consortia will work to better understand the disease and uncover new targets for drug development. A total of $41.6 million is allocated specifically to the autoimmune diseases lupus and rheumatoid arthritis.
Continue Reading


It’s up to you to stop me from blathering. Please, take my survey.

Carie ShermanBy Carie Sherman

It’s been too long, but I’m back. And I need your help. First, a quick update.

Did you know Lupus Colorado has a new executive director? We said goodbye to Debbie Lynch in 2013, who recently retired after many years at the helm of LC. She’ll be greatly missed, but she’s left us all in great hands. I recently met with our new director, Inez Robinson. There’s one thing I know for sure: 2014 will be an exciting year.

Second, I’ll continue to write this blog. We’ve already built a nice community, but let’s be clear: This blog is about you. So think of me as your own personal roving reporter. What information can I provide to that would make living with lupus easier for you?

It’s easy to leave feedback. It takes five minutes and it’ll give me peace of mind that my babbling is of interest and helpful.

https://www.surveymonkey.com/s/R3BJFP3

Together, let’s continue building a community of people affected by lupus in Colorado and beyond. My goal is to bring together patients, caregivers, community members, and even health care providers, in the interest of making life with a chronic illness a little bit better.

Happy New Year!