Thanks, Lupus! 12 Things I’m Thankful For…

In honor of Thanksgiving, here is a list of reasons I’m thankful I got sick.Carie Sherman

No, seriously!

I’m thankful for…

The copays I pay … because it means I have health insurance.

The clothes that fit a little too snug … because it means I have access to prednisone, which stops my flares.

A lawn that needs raking and carpet that needs vacuuming … because it means I have a home to take a nap.

The spot I find at the far end of the parking lot … because that means I was well enough to leave home today.

The huge piles of laundry and ironing … because it means I had the sense to rest rather than killing myself over chores.

My stiff body … because it gets me out of doing dishes after big family events.

The alarm waking me up in the early morning hours … because it means I actually slept.

My fatigue … because it’s helped me figure out what really matters in life.

My pain … because it’s helped me have more compassion for myself and others. (Everyone has pain. Pain doesn’t mean you must suffer.)

My fevers … because they remind me to rest, and everyone needs rest.

All of my symptoms … because they made me take a hard look at my life and make changes that benefit, rather than damage, my health.

My struggles … because they remind me I’m strong and remind me that I’m loved.

Please add your own reasons in the comments below. Happy Thanksgiving!


Depression: Reflections on Robin Williams and Recognizing Pain in Others

Robin Williams’ death rocked the worlds of many. I share the sentiment that so many people have expressed, that it’s hard toCarie Sherman believe someone who made so many people laugh could have suffered so greatly.

Yet I have a feeling, if you’ve suffered from clinical depression (and it’s close cousin, addiction), the news isn’t that surprising.

I’m one of the 350 million people worldwide who suffers from clinical depression. It’s been a constant companion.

More than 10 years ago, when I was 26, I woke up and realized there wasn’t a goddamn thing on earth that could motivate me to get out from under my blanket.

I’d been in a “mood” for a while. I blamed work. I missed my family. Life had just felt tough. But that morning, I was on vacation. My parents were visiting. I had a wonderful relationship with my now husband and a multitude of friends I could count on for support.

The mood persisted. Soon enough, I had to get help.

I’ve spent years trying to understand my depression. Anti-anxiety and anti-depressants motivated me get out of bed in the morning. I learned how to recognize Depression’s Voice over my Own Voice through cognitive behavior therapy. I found refuge in exercise: Running, hiking, yoga. Rinse, repeat.

And I got better. I praised the meds, the therapy, the exercise…

If there’s one thing feeling good does, it breeds complacency. I felt invincible, and for a time, I was. But soon I “knew” I could do it without the meds. I upped the exercise and sought different methods through therapy.

I did everything I could to avoid pain and increase pleasure. For me, pleasure equaled busy. I buried myself at work, went to school at night, ran races, volunteers for charities, threw parties, binge-watched the Sopranos, read every bestseller. Each unit of time I was given was scheduled.

Little did I know, that which I ran from would always, always be with me.

It took getting sick to find this out. My lupus-like illness brought my treadmill life to a screeching halt. And without all my distractions, life felt, once again, impossible.

But I had to get out of bed. I had a family. And as worthless as I felt and as loud as Depression’s Voice was, I could still recognize my own. It told me to hang on, if only because my daughter didn’t deserve to navigate this life all by herself.

So I began a new march–recycling what I’d learned years before in an effort to get better.

This time, it didn’t work. Therapy took far more energy than I had in my reserves. I could hardly shower, much less drive across town. I started new medications. The side effects were terrible.

I tried to run. My body put me out of commission for a week.

I couldn’t control this new illness. I couldn’t control my old illness.

I was lost.

Depression is one of the most common complications of chronic illness. It isn’t just being sad. Depression is not just about being hopeless. Like lupus, somedays you feel fine. Other days, you wish for permanent reprieve. You seek pleasure–from socializing, from booze, from drugs, from food–because pleasure remission keeps you going. Depressed people are chameleons–we cloak ourselves in clever disguises so even those closest to us never see our true colors.

I’m still lost. But I credit this loss of control with opening my eyes to a new way of living. Change is constant. Pain is inevitable. Control is an illusion.

So what helped? For the first time ever, I was quiet. I started to trust my intuition and practice gratitude. I realized the only thing I could control was my thoughts. I went inward, through meditation and the seeking of universal principles. I listened for Depression’s Voice, telling me untruths with unmatched persuasion. And I listened for my own voice–that little piece of love that remains strong and steady regardless of my circumstance.

And guess what? I feel better. But the suicide of Robin Williams has forced me to remember:

1) Clinical depression can’t be cured. I’ll always need to do what’s necessary to stay a few steps ahead of it, be that meds, meditation, calling in a higher power, or writing about my experiences with the sincere hope my words could help someone else.

2) Everyone experiences pain. Even those who never show it. And pain–be it physical or emerging from deep within–can take over your life so quickly. Pain can take a single moment to a defining moment in a heartbeat.

I hope by remaining aware of my own depression–my own pain–I remain aware of the pain of others. I have gotten through many days because of the love, kindness, and patience of others.

Today, I promise to be more to the people around me, even if my mind says it’s none of my business or that the person is undeserving. Because you just never know.

RIP, Robin Williams.

Learn to recognize the signs and symptoms of depression in yourself and others.


Life Lessons from a Broken Kitchen Sink

The faucet in my kitchen broke this weekend. Each time you turn it on, it sprays water–everywhere. And though I instantly thoughtCarie Sherman this type of problem was an emergency, it seems plumbers prioritize things like “major pipe bursts” and “sewer back-ups” over my inability to function properly in my kitchen.

So I’m without a water source in my kitchen.

After more than a few “dammits!,” I realized going to the sink for water was far too much of a reflex for me to remember on my own. I finally resorted to forming an “X” over the sink with painter’s tape–a visual reminder of what’s broken and a pattern I need to change.

Now, being without a kitchen sink–in the grand scheme of life–isn’t such a big deal. It can certainly be filed in the nuisance category. But let’s not underestimate the nuisance either: How many times do you use your kitchen sink every day? I reckon it’s a heckuva a lot more than you realize.

It’s been a few days now (plumber is coming tomorrow–they could have been here sooner but they operate like the cable companies and give you windows of time–and though I work from home I do have other obligations–so tomorrow, it is).

And guess what? This morning, I filled my coffee pot in the bathroom. Without thinking about it. I washed my hands, filled the refrigerator water jug, and the pet dish–all without turning first to my kitchen sink. Of course, I had to give extra thought to walking with full water containers the 10 feet from my bathroom back to the kitchen, but it wasn’t that big of deal. It’s just … different.

Kind of like the changes we’re forced to make when the bigger things in life go wrong. Like lupus. It’s not ideal. It’s not what we hoped for in life. But over time, we adapt. We learn to do things differently.

My sink broke, and I needed Plan B. With lupus, you always have to have a plan. Am I rested enough? Is there a place I can sit? What am I doing the day before? Did I pack Advil and water and comfy shoes?

Using the kitchen sink was a habit. So I had to put a big “X” over it. With lupus, sometimes you have to X over a few things to remind yourself that life has changed. I’ve put Xs over many things, and I’m sure you have, too. From where I sit right now, I can see my pill bottles–my visual reminder that life changed, and I need to take my meds.

But time passes. And today, using the bathroom sink emerged as a habit. Just like many of the changes I was forced to make because of my chronic illness. It’s still not ideal. But it’s certainly not the end of the world.

Life is filled with problems. Your sink will break. Your body will fade or your mind will betray you. Relationships will end.

Sometimes, the best you can do is put an X over it, and move on.


Understanding Lupus

Understanding Lupus
A health awareness and educational symposium for the community

The event, Understanding Lupus, scheduled for September 6th at the Blair-Caldwell African American Research Library, has been POSTPONED. A new date is in the works. Please keep checking back for further notice.

The mission of this presentation  is to heighten the awareness and education within the community about the mystery, symptoms and treatment of lupus. It will attempt to provide useful information on managing one of the most rapidly increasing health concerns in America today, especially within African American and Latino communities.  This interactive activity will attempt to provide a better understanding of lupus for patients, caregivers and the medical community.

Keynote speaker Dr. Elena M Massarotti, Co-Director, Center for Clinical Therapeutics, Rheumatology, Director, Clinical Trials, Lupus Center, Division of Rheumatology at the Brigham and Women’s Hospital in Boston, MA .
10 a.m. to – 2 p.m.
Saturday, September 6, 2014
The Blair-Caldwell African American Research Library
2401 Welton Street
Denver CO 80205
Links Room, 1st Floor
720.865.2116

Presented by:UL LOGO circle
The Denver Urban League Guild of Metropolitan Denver in partnership with Lupus Colorado.
Sponsored by: Med Learning Group

Light refreshments will be served*
Seating will be limited*