It was August of 2011. I had just returned from a weekend at the beach with my best girlfriends. We spent three days lounging like lizards with drinks in hand, carrying on as if we were 21 again.
I returned a hot mess. After a week of what I believed was worst hangover ever, I turned to my primary care doctor. After my exam, she suggested I see a rheumatologist. I can’t remember asking her why. I trusted her, so I went.
Man, rheumatologists take a LOT of blood.
By the time I went in for my follow-up, I’d convinced myself my diagnosis would be extreme laziness.
After all, I’d just changed careers. Moving from a relatively stressful corporate job to a lot less stressful “freelancer” status totally fit Diagnosis Lazy. My daughter had just turned one. Aren’t all new 35-year old moms tired?
Client Support in the 21st Century
From Debbie Lynch, CEO
One of the issues we have struggled with for the last 10 years is how to facilitate providing support, other than financial assistance, for those with lupus and their families.
In the early part of the decade we organized support groups, 18 to be exact, in various parts of the state. A written manual and training were available for group leaders as was a quarterly stipend for meeting expenses.
About 9 months into the first year, imagine our surprise when we were ready for the quarterly conference call and no one called in! Follow up phone calls found that for various reasons groups were not meeting, had disbanded altogether or had decided to call each other as needed.
LC launches electronic newsletter
Welcome to our first electronic newsletter. Lupus Colorado staff members couldn’t be more thrilled that hundreds of you responded to our mailing indicating that you want to continue receiving the newsletter, but in its electronic form.
“While we know there are some who will miss the printed piece, the cost-savings benefits are substantial,” said Lupus Colorado CEO Debbie Lynch. “If we can allocate more money directly into lupus research, we believe that is the responsible thing to do.”
Postage costs are increasing in 2013 as has been the trend for the past few years. Lynch estimates the organization will save more than $14,000 annually on printing and postage costs. The newsletter will still be published each month, but rather than be delivered to mailboxes, it will be delivered to Inboxes.
Not to be forgotten are the advantages to the environment. Reams of paper will be saved, not to mention envelopes, ink and stamps.
March 22, 2013 – Chances are, you know someone suffering from lupus. But you probably don’t know it, because people with lupus rarely look sick.
Although lupus affects more people than AIDS, sickle cell anemia, muscular dystrophy, cerebral palsy, multiple sclerosis, and cystic fibrosis combined, sadly—researchers still don’t understand the cause or have cure. And research for lupus is severely underfunded.
On May 3, 2013, Lupus Colorado is raising awareness and raising money for the disease with a benefit concert for lupus research, An Evening of Motown Magic. This energetic evening of dancing and entertainment will feature two of Denver’s most sought-after acts, the Hazel Miller Band and Ron Ivory’s One on One, at one of Denver’s premier venues, The Soiled Dove Underground at Lowry.
Hazel Miller has been a popular performer in Colorado for 24 years. Whether she is singing blues, jazz, pop, or gospel, her voice charges the songs with a primal dose of genuine soul.
Ron Ivory’s One on One is a quartet which showcases Motown, classic soul and old school rhythm and blues just the way you like it. This quintessential quartet features songs from the 50’s thru the 90’s, including songs by artists such as The Temptations, The Four Tops, and Marvin Gaye.