Have You Met Kesha?

Kesha is Lupus Colorado’s office manager. In June, she celebrated her 10 year “lupie-versary.”  

Like so many people with lupus, her journey to diagnosis wasn’t easy. And it seriously impacted her life.

When Kesha was just 12 credits shy of her degree, she started feeling sick. In fact, she was sick for about five months. Her doctors misdiagnosed her, unsure of what was wrong. It took a trip to the emergency room on June 28, 2007, to know the severity of what Kesha was facing.

Her body was shutting down. She spent 32 days in the hospital undergoing test after test and ingesting large doses of prednisone. On the 16th day of her stay, she was diagnosed with systemic lupus erythematosus.

Two months after her diagnosis, Kesha’s kidneys started to fail. That’s when she was also diagnosed with lupus nephritis. Kesha had to put her dreams of finishing college on hold indefinitely. She had to move back to Colorado to be near family.

Selfishly, we’re glad that Kesha is back in Colorado. And we’re thrilled that she’s able to help others with this terrible disease. As office manager, she’s the person people in Colorado speak with first about how their own disease in impacting their lives. Kesha helps people find the resources they need, including connecting them with Lupus Colorado’s emergency assistance fund. This fund helps with financial burdens, such as high utility bills, medication co-pays, and unexpected hospitalizations.

Kesha’s ability to help others with lupus helps to keep her own trials in perspective.

“As the Office Manager for Lupus Colorado, being able to help someone daily gives me hope and keeps me going and able to maintain lupus with peace of mind,” she said.

Thanks for all you do, Kesha!

City and County of Denver Launches Temporary Rental and Utility Assistance Program

Are you struggling with paying your rent, facing eviction or another housing crisis? The City and County of Denver has launched a new pilot program to assist residents who may be facing a housing crisis. Through the new Temporary Rental and Utility Assistance program (TRUA), the City is offering resources to help mitigate displacement, help residents avoid eviction, and provide time to help connect residents to alternative housing for longer-term stability. 

Details regarding the program and how to apply can be found on the City and County of Denver website or Click Here to download the PDF.  

Lupus Research Alliance LuCIN Clinical Trials Network Launches Inaugural Studies

The Lupus Research Alliance has announced their first five clinical trials being conducted through their Lupus Clinical Investigators Network (LuCIN). LuCIN was founded, and is managed and funded by the Lupus Research Alliance to facilitate the development of new lupus treatments.

Two of the five clinical trials are being conducted in Colorado.  One is currently recruiting for participants, which could be a great opportunity for local Colorado lupus patients.  Please click on the links below to be directed to the website for each clinical trial, which will provide the purpose of the study, eligibility, and contact information if you are interested in participating.

LuCIN Clinical Trials being conducted in Colorado:

  1. In collaboration with AMPEL BioSolutions and ImageAnalysis, the Dynamic Imaging to Assess Variation in Lupus Nephritis (DIVINE)study tests the potential for sophisticated MRI technology to assess lupus nephritis.
  2. The Lupus Research Alliance is collaborating with Celgene Corporation to study an oral drug CC-220as a potential treatment for SLE.

Additional LuCIN Clinical Trials:

  1. In partnership with Pfizer, the study VAlidation in LUpus of an Electronic Patient Reported Outcomes Tool (VALUE)is testing a smartphone app enabling lupus patients to report on symptoms in real time.
  2. In conjunction with Horizon Pharma Rayos Inhibits Fatigue in Lupus Erythematosus (RIFLE) will test the company’s prednisone RAYOS® on severe fatigue and morning stiffness.
  3. The Lupus Research Alliance in partnership with Merck/EMD Serono is collaborating to evaluate M2951, a novel inhibitor of Bruton’s Tyrosine Kinase (BTK) in lupus.

Lupus Colorado is a proud Research and Advocacy Partner of Lupus Research Alliance. 

For more information about these studies, please refer to the Frequently Asked Questions or contact Lupus Research Alliance at 646-884-6074.